Charlie Teo Foundation awarded cancer researcher Matt Dun our first Alegra’s Army Grant two days before his daughter Josie lost her battle with DIPG, the deadliest type of childhood brain cancer. His determination and tenacity in continuing on his game-changing brain cancer research in Josie’s memory is a true inspiration.
“The first thing you really see with a DIPG patient is that they lose their mobility, they lose their co-ordination, and then that gets steadily worse an...d they lose their ability to move at all. They lose their ability to swallow and they have trouble eating, and then they lose their ability to see and they lose their ability to talk. And then they lose their ability to breathe… I’ve learnt a lot from our experience and we’re trying our hardest to ensure that kids are given an option. Not only at diagnosis but when the cancer comes back. We want all kids, particularly Australian kids who don’t have any options, to have an option. And then we want to improve on those options continually until we can change DIPG from a death sentence to either a manageable condition or a cure.”? Matt Dun.
Watch Matt Dun on SBS Insight: chasing a medical gamechanger.